Saturday, October 31, 2015

You Know You Have Chronic Pain When...

Greetings,

This is one of those "list" things that I am going to come back and add to as I come up with more of them. I may or may not date them as I go. So far the list looks like this...

You know you have Chronic Pain when:

1) Your medication never decreases it only increases.
2) Your pain medication collection rivals some drug dealers.
3) Your pain medication makes drugs off the street look soft.
4) When the doctor asks you to colour in the figure to show where it hurts, you circle it.
5) You giggle quietly under your breath when Panadol and Nurofen ads talk about "stong pain".
6) Your day is measured in milligrams rather than minutes.
7) The difference between a "good" day and a "bad" day is your level of consciousness.
8) The choice between one effective painkiller and another is how long you will be unconscious for.
9) A "zero pain" day is usually a "zero consciousness" day.
10) What you will do today, depends on how much you can afford to pay for it tomorrow.

Cheers,

Henry.

Thursday, October 22, 2015

The Good and the Bad...

Greetings,

I have digressed to many different subjects over the past couple of years, but finally I have a post which is back "on point". So when to and had my BMD (Body Mineral Density) scan, and then trotted off to see the specialist, as expected a year on Prednisone has made my osteoporosis worse. So, time to be a little careful. As a result I had the choice of getting some pills to take on a regular basis to improve things or get an infusion which would last me two years.

Think now people... pills need to remember to take... infusion is already in the system... good old fibromyalgia "brain fog" has been playing hell of late. No real choice for me really. So, that is the good side of things. The bones will improve and I don't have to worry about it for two years.

What's the catch? "Flu-like symptoms and some joint pain." No worries right? Joint pain is a part of "normal" life for those with FM, and "flu-like symptoms"? What? A bit of a temperature? No worries. Boy, was I wrong. As I am sitting here writing, my head is aching like I have had the worst sleep and worst hangover ever, all my joints are singing that tune that I know so well and hate, and I feel like I am going to turn into Ghost Rider any minute as I am cooking behind my skin.

There are some things that we should all take out of this...
Stay away from Prednisone unless the doctor says you really need it.
Get your flu-shot every year because this feeling sucks
Finally, I do not regret getting the infusion because it is going to be worth it in the end.

On that note, I am off to go find something cold to drink and to sit in my recliner and find something good to watch until my friend comes over. Oh, yeah, forgot no Panadol or equivalents for me as the sarcoidosis is still in the liver, which makes getting my temperature down "interesting". Stay strong my readers, look after yourselves, and remember you only get one chance at this, you might as well enjoy what you have.

Cheers,

Henry.

Tuesday, October 13, 2015

Where has "The Dream" Gone?

Greetings,

Of late I have had a lot of time to think. I have been a member, paid and unpaid, of the Society for Creative Anachronism (SCA) now since 1992. This means I have been interacting with various parts of this organisation for some time. I have seen some of the great parts about it, and I have also seen some of the not so great parts about it. Problem at the moment is the latter seems to be overshadowing the former of late, and I am losing my faith in the SCA and seriously asking myself whether or not it is time to move on.

This is a post which has been sitting around waiting to be written for a long time, though it was a symptom of a year of some severe loses and resulting impacts on my life. The more I think about it, I think that these elements have only served to highlight what my usually positive attitude has been hiding for a long time. As I have stated I am a long-standing member of the SCA, I have participated in all three forms of combat in some part, and excelled in rapier combat. I have accrued various titles as a result of my interactions with others and also dedication to what I had chosen to do. I am not going to go into any detail here as I do not think that there is any point, this is mere background.

For me at the moment, the fantasy is gone. Titles and awards to me have begun to mean nothing to me so I strive only to do those things which are of interest to me, or which will assist those friends which I have within various groups. This has resulted in a loss of excitement. I used to get excited about the next event I would be going to and would go out of my way to go to as many as I could. Now I only attend those which I really feel like going to or those which I have been asked to attend.

During my time in the SCA I have gained quite a bit of skill in the art of rapier combat, as a result I have won quite a few tournaments in my time. I used to be really enthusiastic about the prospect of a tournament and the chance to show off my skill and come out on top, now not so much. These victories do not hold the enticement they once had.

The Society itself has changed, within the groups it can be seen that the high ideals that used to be expressed by its members in word and deed both on and off the field seem to be diminished. The importance of Courtesy and Chivalry both on and off the field of battle seems to have been lost somewhere in the importance of titles and making a good impression on those with supposed power within the groups. Politics is invading all parts of the Society, there is nowhere to hide. I have had some friends who have been lost and others who have reduced their contact due to politics, and indeed problems can result by the mere association with people of the "wrong" character. The determination being up to another group of people. The result of this is that the openness of groups that I once experienced seems to have disappeared and now it is difficult to find common ground with many people, even though we are all playing the same game.

The Society, at least in Australia, has become a victim of its own success and circumstances. As research in subjects and knowledge has grown, so too has the expectation of the performance and dress of its members. It would seem that gone are the days where a person would be accepted turning up in a t-tunic and jeans, just as much as the person who researches every element of their attire. Research expectations have also grown, if every element is not researched, it can almost be expected that someone will criticise the work which has been done, or not done as the case may be. In this there is no encouragement and direction for further research mere criticism of the work which has been done. What is the most concerning about these standards is that such standards are even put upon newcomers and this quite frequently scares them away, the leeway of time to get established is gone, the expectations have replaced it.

Conservatism has invaded the groups in action and in the dress of individuals. These outside aspects, more appropriate to a Victorian recreation group have found themselves present in this medieval and Renaissance group. Along with this has gone the sense of humour and sense of fun. Many of the individuals take things much too seriously and have forgotten the humorous and cheeky elements which were always present in the past.

So with all of these elements present the question which has to be put is; is it time to move on? The question that follows is where to? HEMA? I have already referred to my new School the School of Historical Defense Arts (SHDA) as my "retirement" plan. It covers all of the elements of research and combat which I enjoy without the other elements which I so dislike. Or should I keep fighting and hope that things improve? There are still people in the SCA with whom I am still good friends, and events which I attend which I do still enjoy.

I think at this stage that a partial movement away, while maintaining some contact is the best way at the moment. I will stay involved with the SCA and attend those events which I choose to, and be with those people who I like to be with and see how it goes. I hope that sometime in the future the SCA gains some of what it has lost and that my faith is restored, as I believe it would be a sorry day for me to move completely away and leave all of those people who I still call true friends behind.

Cheers,

Henry.