Greetings,
It has been a while since I have posted on here because I have not really had all that much to say about my FM... days. I dislike calling them "struggles" because that gives the whole thing too much power over me. Sure, I do struggle some days, but I like to think I am on top of it most of the time, even if this concept is only in my head, and that is mostly enough. I have found if I keep myself positive, then that is a good part of the battle. Yup, if you haven't figured it out yet, I am a fighter.
I am the sort of guy who sits on the waiting list to go into the "Persistent Pain Management Clinic" for an extended period of time. I had a second referral sent, because my first one expired. I was told about the appointment well in advance, and decided to investigate pain, and write something about it. You can read it if you like, it's called "On Pain: A Personal Discovery". It was a most interesting investigation. When I went in there for my first appointment and had a chat with their psychologist, she looked at me like, "What are you doing here?" she actually said there wasn't much they could do for me, because I already was doing all they would be teaching me. I dropped a copy of the investigation off for them to read. My next appointment was with the physiotherapist, they gave me the same look. So, I was promptly discharged.
Anyway, I am rambling as I am want to do when I write my posts, I will get back to the point. It looks like the insomnia associated with FM has decided to kick in. My sleep has gradually gotten shorter over the past month or two. When it was getting down around 7 hours, I was a little concerned. This morning I woke up at 3 am, after going to bed at 11 pm the night before. Looks like it is a "thing" now. I will just have to go back and add it to the list I suppose, at least if it settles in without any answers from the doctors. My sleep specialist is not going to be happy. I just hope they don't decide to take my VPAP machine off me. Nope, no typo, I don't have a CPAP, I have a variable pressure machine.
I have Obstructive Sleep Apnoea like other people, but I also have Central Sleep Apnoea as well. The second one means that occasionally my lungs get bored, and just decide not to work. Yup, lots of fun. This explained the really bad sleep I was getting before I was put on the machine and the reason the CPAP machine I was first put on didn't work. Anyway, I think that is enough of an update for now. Still writing, still fencing, my writing is going mostly to my Patreon page, which you should really have a look at if you like my writing. Anyway, I hope you have a comfortable, if not pain-free day.
Cheers,
Henry.
