Friday, July 25, 2014

"Waiting Room" Survival

Greetings

Have you ever sat in a waiting room and thought "This is taking ages."? I think that we all have. For those of us with chronic health issues this is a common thing, mostly waiting for doctors. While this is mainly focused upon this sort of waiting period, it also applies to waiting for things in general. This post is aimed at how to survive the long wait, be it in a waiting room or waiting for something else to happen.

With regard to waiting, in Australia, the most common is waiting with regard to being in the public health system, but can be applied to pretty much anything designated as "public", be it public transport, or social security. In all these instances there are periods of waiting, regardless of when your appointment was supposed to be, the question here is how to survive the wait.

1. Patience is important. Getting annoyed about having to wait is not going to get you anywhere. It is more likely going to annoy the people who you are waiting for and also the office staff with whom you will have to deal. This is not helpful to them and certainly not helpful to you. Waiting lists count with regard to this one. No point in getting all up in arms if there is nothing you can do about it. Having patience in these situations will help immensely, put your mind on something else besides waiting, this leads to the next point.

2. Look at this situation as an opportunity rather than a burden. This will require a different point of view, and a slight change in attitude with regard to waiting. You can sit there and watch your life tick away, or you can do something productive. The time which you spend in the waiting room could be spent doing something useful. I have found it is useful for making lists and planning for what I am going to do with the rest of the day, and this is just the tip of the iceberg. Change your attitude and look at this as an opportunity.

3. Bring something to read. I pack a book whenever I leave the house, and especially when I am going somewhere for an appointment or will be taking public transport. In fact, for the most part this is my prime time for reading, nothing else better to do then you might as well read. This works best if you pick something that you are really interested in reading. The local rag newspaper or celebrity magazine will only really hold your interest for a little while. Find a novel or some other book to read that you are actually interested in and you will find that time will fly along. Only one point, if you are on public transport, just make sure you still get off the bus or train when you need to, it is a little embarrassing missing your stop because you were too engrossed in your book.

4. Find a hobby that you can do when you are out, or at least read about when you are out. This links back to the previous point in some ways, but also gives you more options. There are things which you can do which are conducive to waiting rooms. Writing, especially with today's electronic means is easy. Knitting is also an option, just be a little careful in your choice. Wood carving in the waiting room of a hospital does not inspire confidence. The choice of book becomes a lot easier when you are reading about a hobby or when the hobby has a lot of books about it. In my particular case I can always find a fencing book to read and there is always something to research.

Surviving the waiting room is not all that difficult, sure it is frustrating, but you can get things done and while away the time relatively usefully. The same can be said for being on waiting lists for specialists or whatever. Ignore how long it is taking and go and find something to do which will take your mind off it. Look at your time waiting as an opportunity to get something done, or get a good book read and you will find that the idea of waiting rooms or public transport actually becomes a positive thing rather than a negative one.

Cheers,

Henry.

Sunday, July 13, 2014

Memories of a Great Man

Greetings,

On the 6th of July 2014, Brad Walker passed away, he was surrounded by his three children and their spouses. He passed away after a long fight with chest infections which go back seven years, and also due to injuries sustained during a fall almost a week earlier. These are the simple facts, but they hide a much more important story, he was my dad.

My dad was great. He is not a person whose name you will find in any history books, nor will there be grand memorials built to honour him, yet he was great. He was great to his family and great to his friends. All who knew him will remember him as he touched all of their lives in different ways. To some he was father, to some he was brother, cousin, son, nephew, husband, grandfather, father-in-law and friend. I am sure that he is now with my mother, the love of his life and they are happy again together. This gives me great comfort.

For me my father was a great teacher, he taught me right from wrong and how a man should act. He taught me how to play cricket, he taught me how to shoot, most of all he taught me one of the most important lessons of all, don't quit. Regardless of what you are up against, regardless of the odds which are against you, don't quit. Fight your hardest, so even if you do fail that you know you did your best.

My father supported me in what I wanted to do, regardless of how off-beat or crazy it was. Unlike my friends who wanted to have "conventional" occupations, I decided I wanted to be an historian. My father supported me in this, giving me two great tools to use to assist in this, an inquiring mind. and his support. Later I decided that I wanted to write, and start a fencing school, once again he was there with support, asking how things were going and giving advice about things I should think about. I was never lacking for support from him.

I do not think it necessary to give specific memories of my father and myself here to show you the man who I am talking about. I also do not think it necessary to show you images of my father to show you who he was. The important thing is that he was my father and he was great. He may not be remembered in the history books, but he will be remembered by many.

Cheers,

Henry.

Tuesday, June 24, 2014

Winter is Here... Not Happy.

Greetings,

For the first time, I think, I am actually going to write one of these blog posts while in the middle (I hope) of a fibromyalgia flare. Hopefully there will be some useful information in amongst the ranting and raving.

So this one started yesterday with some leg cramps and neck pain. I was decidedly uncomfortable so I spent the day in front of the laptop writing in order to get my mind of things. Had to miss fencing practice because I could not get there and be useful due to the issues. Actually had to go and have a lay down at one stage due to the pain and pure tiredness getting to me.

Second day... Did not sleep well last night, in fact probably would not have at all if it was not for the medications that I am on. The neck woke up all messed up, neck pain from muscle and bone, not to mention radiating down into the shoulders. The temperature was also not helping at all as it has been quite cold the past couple of days. Got a little bit of writing done and then managed to summon the energy and motivation to leave the house, had to "pay day" and all. Off to town with my lovely wife.

In town, got the money, cramped ride on the bus did not help the already irritated knee. All pretty good until I decided to go down a set of stairs, at which point in time I was reminded why I do not have a license. First flight to landing all good. At the landing there was a stumble and an attempted fall down the rest of the stairs. Luckily my wife noticed the stumble and grabbed me resulting in a fall backward instead of forward. Resulting damage: Minimal, bruised ego, knees a little sorer than before. Had a lovely lunch at my favourite sushi restaurant in Brisbane, minus the opinionated little cow who was sitting next to us.

The nerves are simply just not playing ball. Looks like I am going to have to be extra careful at fencing training tonight. I am determined to go and FM be damned if it is going to stop me from going it is what keeps me going and even if I have to grunt and grumble my way through, I am going. The wife is a little concerned about my fall, so I will take things a little easy tonight. Mostly teaching anyway. Hopefully things will improve tomorrow and I will not be back on here adding another post with the continuing saga.

Cheers,

Henry

Monday, June 2, 2014

Bitten Again

Greetings,

So, I mentioned something a while ago about my knee giving me troubles. Well, I have had an x-ray and ultrasound just for them to find out that it is a perfectly good looking knee which is there. This means of course it that my fibromyalgia has decided that it was high time to come up and bite me in the butt again. I thought that I had this all under control, not to be by the looks of things.

So, this will make my trip to the orthopedic surgeon most interesting, but at least I will know for sure what is going on with the knee, whenever they get around to it. Likewise the trip to physiotherapy is going to be interesting, but at least I should get around to seeing them. Needless to say I am on a waiting list for the both of them.

So, what's the story? The knee is alright in the morning, and gets worse during the day. It also gets worse when it gets cold. Yup, FM all over. Obviously if I use it too much there is an issue, and just to confuse things, if I don't use it enough there are issues. No winning with this one. So, I have been saddled with a knee brace to assist the knee and it is working alright. Similarly I have also been saddled with a walking stick for when I need it.

Looks like I have a trying time ahead, but it is just another bit to get through, like the rest of it. I am figuring that I can work around some stuff and just leave some alone for a while. But be stuffed if I am simply going to put myself in a corner and complain and do nothing. I have stuff to do which needs to get done, and stuff to do that I want to do. Onward and upward I suppose.

Cheers,

Henry.

Sunday, May 11, 2014

Another Mother's Day


Greetings,

This is a picture of Linda Caroline Walker, my mum, she was awesome. She unfortunately passed away from lung cancer a few years ago (For me the number of years does not matter). For me it makes Mother's Day a little hard each year because I miss her one hell of a lot. However it is not only that she is gone she left behind some great lessons for me and my awesome brother and sister. So I also like to celebrate this.

My mum always supported me in what I was doing regardless of what the chosen field was. I decided that I wanted to become an historian by the time I was about 11. Rather than telling me that I should become a doctor or an accountant or something which would earn lots of money she supported me in this endeavour. I had joined a couple of sporting clubs in my time and she supported me in my choices for them, even when I decided that I wanted to fence. She even supported me when I decided that I wanted to do Renaissance Martial Arts a few years later, not sport fencing.

I believe it was my mother who taught me how to cook. Sure I did a Home Economics class or two at school, but it was my mother who sat by me and told me better ways to do things, and how to follow recipes. She was also the one who would support me in this when I decided that I wanted to try things which were a little out of the ordinary as well. This put me in good stead for when I left home I can tell you.

Most of all I have no doubt in the world that she loved me as much as I loved her. She was always there to tend a skinned knee, or for a trip to the hospital. I have lost count the number of days she sat by my bed, or waited in doctor's surgeries, or travelled so I could get the best care that she could find for me. It was her insistence that I should see a specialist about my random pains, the basis of which resulted in first me being relieved it was not all in my head, and for second the diagnosis of fibromyalgia. Sure I pulled a couple of "sickies" in my time, but she was there when there really was a problem or I really was sick.

I also have no doubt that she loved me as much as I still love her in the way her love was unconditional. Even through, tantrums, crankies, misbehaviours and all the other things children do she was always there with a smile showing me the right way. This did not stop when I left home but continued, she was always there with a willing hug and a kiss, always happy to see me. Regardless of the girlfriend who I brought home, she was always welcoming of them, always including them into the family, always trying to help. It is this which I will always remember her most for. Her open heart, her loving attitude toward me.

She touched the lives of many people and none of us will ever forget her. I miss you Mum.

Cheers,

Henry.

Thursday, May 1, 2014

Knees... Why do you not like me?

Greetings,

So, I figured this one was worth the blog, especially because it has some relevance to the overall picture here. Once again, I am going to be writing off the top of my head and not editing it. I have begun to find this most useful, even if the thoughts do get a little jumbled and I do end up a bit off track. I will, however, try and make at least a decent amount of sense.

When I was 15, I was diagnosed with "patela melanasia", also known as "rough knee-caps" undoubtedly a result of over-use and doing too much. Yes, this sort of thing started at least that early if not much earlier in my life. So, the knees have always been a little irritated at times. Now we fast-forward to today....

Still doing too much, add fibromyalgia, a bit of age and you have a pair of knees which are not really happy with me at all. My biggest symptom from fibromyalgia that I get is joint issues. I have joints, they ache or are just plain painful, usually for no good reason whatsoever. For the most part I deal with this myself with exercise and bits of rest here and there, however this is different. So I have taken myself along to my doctor to ask him what I am going to do with myself, etc. So referrals off to the hospital, on waiting lists, blah, blah, blah. I have no idea what the hospital is going to say or do, especially considering I was referred to both Physiotherapy and the Orthaepedic surgeons.

So here I wait. I figure that in the mean time I can keep the doctor up to date with what is going on (situation normal), and see how I can deal with things myself. This is something that I will be discussing with the doctor. What does this all mean? My mobility has reduced quite a bit. I am having more pain in my knees that before. However, I am not quitting fencing, I will find a way around this and lots of other stuff, even if I have to ask for.... help. Something I hate doing. Luckily I get picked up for my school training, now all I have to do is figure out the rest of it. Figure I am going to end up cane shopping a little earlier than I expected.

So, with winter coming on down here in Australia in the next couple of months I can see things getting a little "interesting". I will keep going, I will keep doing stuff, I have no intentions of hiding myself away, though I do think I will have to figure out this "rest" thing, a bit at least. Anyway, I may get around to keeping people up to date with this one, but I do not guarantee a thing.

Cheers,

Henry.

Thursday, April 3, 2014

A Patient and the Importance of Being Patient

Greetings,

The entry which follows may be a bit muddled and a bit random in nature as I am writing it off the top of my head. I am looking at this word "patient" and seeing what I can get out of it at the moment. More to the point it is also looking at a person as a patient in a medical sense.

A medical patient is a person who is under medical care for the reason that there is some medical issue that needs to be solved. This issue can be acute or chronic, life-threatening to minor, it does not matter as soon as you come into contact with a health care professional you become "the patient". In some instances it will feel like you have also turned into a number, and this can happen more the more public the situation that you are in.

Hospitals, or more to the point emergency departments, are designed for sick people. In the case of emergency departments this is for people who have an immediate threat of some seriousness to their health, or they should be anyway. In some situations this is not the case and some of the patients really should be going and seeing their private doctor rather than gumming up the system, but the way that the economy goes it is really not surprising that some do it.

In emergency departments they work on a triage system. This means that the patients are evaluated as to the seriousness of their issue and then are seen in turn from most serious down to least serious. The system is not designed for "first in, first seen". What this means is, if your issue is relatively minor you are going to be waiting a long time. Obviously this is suited to the situation for an emergency department.

Waiting is an issue for some people and they will get very angry if they feel like they have been made to wait too long. Some people will even get quite aggressive about this and start causing issues for the staff. This is not the best way to be dealt with in a positive fashion. In most situations with regard to the public health system, and indeed the health system in general, there will be waiting periods. There is no point in getting angry as this will not get you any further along the queue, more to the point it will irritate those who are working there and will result in a negative opinion of you.

One of the keys to surviving the wait is having something to do. Bring a book if you are going for an appointment. Find something to occupy your mind that will take your focus off the wait. Believe it or not your patience as a patient is really appreciated by the staff. You will be remembered for your patience and your consideration and this will also lead to a more positive outcome for yourself and will assist others around you. The patient patient is a boon and those in the health care profession will thank you for it.

Cheers,

Henry.

Thursday, March 13, 2014

Back Again... Transport Fun

Greetings,

Sorry it has been so long. I decided that I would wait until I could come up with something related to FM rather than just going through detailing my own existence along with great piles of stuff not related to FM. Well, I have sort of come up with something. I will tell you right now that this will not be one of my best posts because I am going to just have a bit of a chat.

So, out with my wife today travelling by public transport. This can be a simple matter and a reasonable joy or it can be a real chore I can tell you. Now, the public transport in Brisbane is not all that bad, even if it is one of the most expensive in the world. Things run reasonably on time and where they are supposed to go and so forth, so there are no complaints about Brisbane Transport in this blog. Some of those who use these services, that is another matter.

There are those who use the transport because they have to (like me), and there are those who choose to because it is better for their health, or it is easier than trying to find parking or whatever. Each to their own...

My first occurrence today was a pair of "gentlemen" and I use that title extremely loosely. They did not use a card nor did they bother to purchase themselves a ticket. More to the point the pair of them looked like they were looking for trouble. They were talking at the height of their voices, bitching about the price of transport for starters, the irony did not hit them at all. Little do they realise that their non-compliance with paying for a ticket is one of the reasons why Brisbane Transport justifies putting the prices up.

My second, I got on a bus sat down in one of the seats near the front with my wife. Comfortably sitting in the spot having a chat. Then some older lady gets on the bus, looks at the pair of us glares and then finds somewhere else to sit. Like she was expecting us to get up and move. This is not the first occurrence of this at all, once again it comes down to the "invisible illness" issue.

I am extremely tempted to buy a walking stick just so I can have it with me so there is something visible that says that there is a problem and maybe people should not judge so quickly. In this I just get irritated by the expectation that because I am younger I will instantly move because the older person wants to sit there. Sure, if it is the last seat on the bus, I may have moved, but it was not. The "lady" had to go a whole one seat back on the bus to get to another one. The shock. The horror of it all. Please do excuse the sarcasm.

Anyway, I am thinking that there may be more entries to come. However, I would not hold your collective breaths on this one. I feel that this blog has come to a stage where I am just going to write when I get the inspiration to do so. I had considered taking the whole thing down but was counselled against it as I have some regular readers who get worth out of my ramblings. You can thank them for the continued presence of my blog.

Cheers,

Henry.