Showing posts with label information. Show all posts
Showing posts with label information. Show all posts

Saturday, April 27, 2019

Henry's Purple Challenge

Greetings,

I am going to be rather busy over the month of May, why? A small project to raise awareness about fibromyalgia (FM) and also to raise some money for a local charity which I like to support in the process. It is also an excuse for me to get to fence a lot of people and do some good in the process, not only for myself but others as well. See you in May.

Cheers,

Henry.

Henry's Purple Challenge

Fibromyalgia the condition which I have is identified by the purple charity ribbon, hence the name of this challenge being the “Purple Challenge”. It also happens to be the colour for sarcoidosis as well. The aim of this challenge is primarily to raise awareness of people with fibromyalgia and other such similar conditions, and raise some money for charity along the way.
The primary intent of the challenge is to fight $1 bouts for the entire month against any combatant. Obviously these combatants will have to have been suitably authorised in rapier combat should they be SCA members, and suitably qualified by an instructor from other recognised Historical European Martial Arts schools. These combats will take place wherever and whenever I am at an event or training session by request of the individual who is making the donation. Obviously, sufficient time must be left in the event or training session for the bout to be completed. Any further information can be gained by contacting me.
The money raised from these bouts will be donated to the Princess Alexandra Hospital Research Foundation. Needless to say donations to the Foundation will also be happily accepted. I have chosen the PAH Research Foundation because they are a local research foundation doing important research, and by all accounts, no one in Australia is doing research into FM. 

International Awareness Day

May 12th 2019, is International Awareness Day for Chronic Immunological and Neurological Diseases, which includes Myalgic Encephalomyelitis (ME), Chronic Fatigue Syndrome (CFS), Gulf War Syndrome (GWS), Multiple Chemical Sensitivity (MCS), and Fibromyalgia (FM). For the most part, many people will not know what many of these conditions are or how they affect people with them. Needless to say the International Awareness Days are designed to reverse this.
Obviously my main interest is raising awareness of FM. Information can be found all over the Internet, some of it is good some of it not so much. Below, is part of the Wikipedia page definition for Fibromyalgia.

“Fibromyalgia (FM) is a medical condition characterised by chronic widespread pain and a heightened pain response to pressure. Other symptoms include tiredness to a degree that normal activities are affected, sleep problems and troubles with memory. Some people also report restless legs syndrome, bowel or bladder problems, numbness and tingling and sensitivity to noise, lights or temperature. Fibromyalgia is frequently associated with depression, anxiety and posttraumatic stress disorder. Other types of chronic pain are also frequently present.

The cause of fibromyalgia is unknown; however, it is believed to involve a combination of genetic and environmental factors, with each playing a substantial role. The condition runs in families and many genes are believed to be involved. Environmental factors may include psychological stress, trauma and certain infections. The pain appears to result from processes in the central nervous system and the condition is referred to as a "central sensitization syndrome". Fibromyalgia is recognized as a disorder by the US National Institutes of Health and the American College of Rheumatology. There is no specific diagnostic test. Diagnosis involves first ruling out other potential causes and verifying that a set number of symptoms are present.” https://en.wikipedia.org/wiki/Fibromyalgia

Saturday, March 30, 2019

Keeping Updated

Greetings,

I have a wad of articles which my mother gave me about fibromyalgia. I have read most of them, gone through others and disregarded what they said also because they were off-track. This formed the prime knowledge which I have been basing much of my conclusions about for quite a few years, especially considering most of these articles date back to the late 1990s. Things have changed.

I took these in with me when I saw my physiotherapist and he was impressed about the amount of reading that I had done, but suggested that I should update my knowledge. I had a think, and it is true, those articles are some 20 years out of date! Things can change quite quickly in the medical world and while somethings do stay the same others do change. Needless to say, I have been on the look out to see what has changed and quite a bit has.

Fibromyalgia has actually been recognised as a real condition by many doctors for starters. This is a big help because it was for many years just palmed off as just psychosomatic. Of course there are still doctors out there who are arguing against the existence of this disease because of its multiple presentations.

There is a lot more information out there than there was a while ago. More information for people who have the condition and also more information for medical practitioners as well. I encourage people who have the condition or who care for someone who has the condition, in any way to go and have a look what's out there. Not just one article, not just one point of view, but several different points of view. It is only through a collection of these points of view that you will get a real idea about what's going on.

There is some really exciting stuff out there. I may even get around to sharing some of the stuff which I have been reading. Keeping updated means that you will understand more about your condition and this can only be an asset. Take it as information that you can use to tailor your life around, or through circumstances so that you can live well, and more importantly LIVE.

Cheers,

Henry.